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Page Updated 3/25/2002 (M)

MA Governor  Signs Interpreter Bill

Governor Cellucci signed into law, The Emergency Room Interpreter Bill", officially know as Chapter 66 of the Acts of 2000:  An Act Requiring Competent Interpreter Services in the Delivery of Certain Acute Health Care Services.

 

Welcome to Asthma Advocacy:

A Cartoon HouseAdvocacy provides you with links to organizations working to provide you with the resources needed to promote effective disease management.  Learn about legislation, grant programs, government initiatives and managed care policies that affect the quality of chronic disease care on the local, state, and national levels.  Other miscellaneous advocacy resources for the non-profit sector are also included here.


Ten Rules of Advocacy from the Massachusetts Medical Society

10.  Know who you are (a patient/physician advocate).  What is good for your patients will be good for your practice and quality healthcare in Massachusetts.

9.    Know your stuff / issue; why it is good or not for your patients/district/specialty; who supports, opposes, and why;  Be clear about the opposition's strength and weaknesses.  Acknowledge legitimate concerns and refute those that are incorrect.

8.   Know your legislators - their interests, district, biases, and voting records.

7.   Know the legislative staff.  None out ten times, these are the people you will speak with and write to.  They are invaluable sources of information and the key to your entry into the legislative process.

6.   Your word is your bond.  Never promise something you can't deliver or overstate the relative importance of an issue.

5.  Build coalitions.  There is strength in numbers.  Look for allies everywhere.  In politics, an ally is someone who may disagree with you on every other issue, but supports you on the issue at hand.    Don't assume the opposition is homogenous - finding the one supporting group from the "other side" can be the golden bullet.

4.  Don't waste time on opponents (or legislators) who are publicly opposed to you.  Focus on relationships with allies or people who are flexible and keep an open mind.

3.   Today's opponent may be tomorrow's ally.  Never allow a legislator to consider you a bitter enemy because you disagree.

2.   Thank those that help you.

1.  The power of the ballot box is your, VOTE!


Prescription Drug Patient Assistance Programs:

1.  Pharmaceutical Research & Manufacturers of America

To make it easier for physicians to identify the growing number of programs available for needy patients, member companies of the Pharmaceutical Research and Manufacturers of America (PhRMA) created a directory which lists pharmaceutical company programs that provide drugs to physicians whose patients could not otherwise afford them. The programs are listed alphabetically by company. Under the entry for each program is information about how to make a request for assistance, what prescription medicines are covered, and basic eligibility criteria.

To view the 2001-2002 directory in Adobe Acrobat PDF format, click Directory of Prescription Drug Patient Assistance Programs.

2.  Volunteers in Health Care:  RxAssist Program
RxAssist, a national program supported by the Robert Wood Johnson Foundation, provides health care providers with information on accessing more than 100 pharmaceutical manufacturers' patient assistance programs. These programs usually offer a limited supply of free prescription medication to eligible patients. Providers can search RxAssist based on the following variables:

  • Company name
  • Brand drug name
  • Generic Name
  • Drug therapy class (ex: asthma, hyperthyroid, antibiotic, etc)

RxAssist is continuously updated. Volunteers in Health (VIH) contacts all companies in the database at least once every 3 months to inquire about any changes. VIH also makes updates routinely as we learn of them--usually from tips received from physicians' offices and clinics that we then verify with the company. VIH also routinely adds new programs and companies to RxAssist.


State Resources/Links/Organizations Advocating 
 For Effective Asthma Care

  • Massachusetts Medical Society
    The purpose of the Mass Medical Society is to do all of the things necessary and appropriate to advance medical knowledge and to develop and maintain the highest professional and ethical standards of medical practice. This newly revised informative site contains journal publications, many community health resources and breaking news in the health care industry.

    Links Within Mass. Medical Society:

    District Medical Societies
    Committees & Task Forces
  • Massachusetts Nurses Association
    The Massachusetts Nurses Association (MNA) advances the nursing profession by fostering high standards of nursing practice, promoting the economic and general welfare of nurses in the workplace, and by lobbying the legislature and regulatory agencies on health care issues affecting nurses and the public.
  • Massachusetts Hospital Association
    Through leadership in public advocacy, education, and information, MHA represents and advocates for the collective interests of its member hospitals and health systems, and supports their efforts to provide high quality, cost effective, and accessible care.  The site also contains links to a multitude of health care related sites across the country.
  • Health Care For All
    Health Care For All's Policy Department monitors and analyzes public policy affecting Massachusetts residents' access to health care. It is affiliated with Health Law Advocates, Inc. (HLA) in Boston, MA, a public interest law firm  founded in 1996. HLA is the only non-profit law firm in the country that is affiliated with a grass roots organization and is dedicated solely to ensuring access to health care for society's most vulnerable members. This alliance has added legal tools to Health Care For All's organizing and policy expertise.
  • Healthy Homes for Healthy Kids Coalition
    The mission of the Healthy Homes for Healthy Kids Coalition is to reduce the prevalence of childhood lead poisoning, asthma, injuries, and lack of access to health care that occur because of poverty of the poor conditions in the home.  For more information, call Attieno Davis at (617) 350-7279, Ext. 124 or contact Health Care For All.
  • Healthy Homes Project
    The Healthy Homes Project advocates for city and state laws, changes that will regulate policies and problems, and funding sources to responsibly address children's health & housing conditions.  Forty two percent of the homes assessed were affected by asthma.  The Healthy Homes Project serves Chelsea, Cambridge, and Franklin County, Massachusetts. For more information, call (413) 774-3167.  There is no web site yet.

Listed below are links to MA state agencies serving the health and health information needs of the citizens of the Commonwealth:

  • Massachusetts State Senators & Representatives
    Look-up your state senator or representative.  Learn what committees he/she serves on and how to contact him/her to advocate for your patients. 
  • Search Current Legislation & Laws in MA
    The Legislature provides this information as a public service.  To verify information about pending legislation, you can call either the Senate Clerk's Office at (617) 722-1276 or the House Clerk's Office at (617) 722-2356.

Federal & National Advocacy Resources

  • American Lung Association
    The American Lung Association serves as the hub of a nation-wide legislative network that enables state and local ALA  volunteers to participate in grassroots advocacy on a variety of lung health-related public policy initiatives.

    ALA's Congressional Toolbox:  Tips to help you communicate with your legislators.
  • Agency for Healthcare Policy & Research  (AHRQ)
    AHRQ, part of the U.S. Dept. of Health and Human Services, is the lead agency charged with supporting research designed to improve the quality of health care, reduce cost, and broaden access to essential services.

  • U. S. Department of Health & Human Services
    The Department of Health & Human Services is the federal government's principal agency for protecting the health of all Americans and providing essential human services, especially for those who are least able to help themselves.

Other Advocacy Resources/Links of Interest

  • Associated Grantmakers of Massachusetts (AGM)
    AGM is the regional association of grantmakers serving the Commonwealth and the premier organization in New England supporting nonprofits engaged in corporate and foundation fund-raising.  AGM bridges the gap between grant-makers and grant-seekers, providing both communities with professional support and skill development opportunities, while elevating the impact of philanthropy.

  • The Non-Profit Zone
    This volunteer-run and funded website provides links to information on how to lobby & become actively involved in activities. They will research federal legislators working on topics of interest to you at no cost



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